I am really beginning to dislike the burning in my face from the butterfly rash. I can just be sitting there and I light up like I'm on fire. I cant get it to calm down until it's good and ready.
The weather today has made me very, very tired. Couldn't manage to go into work today I was so exhausted. Also been fighting headaches...The pain just gets more obnoxious all the time.
Am doing the Prednisone right now to try and get the pain under control. It's only a pulse but I really wish I could keep taking it regularly so I can have some kind of a "Normal" life. It still sucks but I'm not stuck in bed every day.
I keep fighting but sometimes I realy feel like the deck is stacked against me.
